Welcome to The Mya Campbell Appeal

Our beautiful daughter Mya who is 7 years old has Dravet syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), a rare, severe, uncontrolled and fatal form of epilepsy and severe global developmental delay. Mya has also been diagnosed as having ADHD (Attention Deficit Hyperactivity Disorder). Mya has no speech and needs help with all aspects of her life including bathing, feeding, dressing, walking and literally everything else.

Mya’s illness is life threatening and she could die of SUDEP (Sudden Unexplained Death in Epilepsy) and we hope and pray every day that this doesn’t happen. Mya has very frequent seizures and has to have oxygen during and after an episode.

Mya has spent many occasions in Great Ormond Street Hospital’s intensive care unit for prolonged periods and has been in and out of different hospitals thousands of times since she was born. There seems to be no cure for Dravet’s and Mya has been on a cocktail of medication to try and help, but without success. Mya still has frequent seizures, so we try our best to make her life as comfortable as possible.

Mya has sadly suffered from her illness since she was just a few weeks old and has been always been on a cocktail of drugs. Mya is unable to speak and has no sense of danger and requires constant 24hour round the clock supervision and care. Unfortunately there is no known cure for Mya's condition which means she will never outgrow the condition and will be dependent on our support with all her day-to-day activities and needs for the rest of her life. Mya is also home educated as her needs are so complex and paramount.

We are trying to raise urgent funds for major adaption works to our home to cater for Mya's needs and to make her life more comfortable and for a seizure alert dog.

Mya’s life looks very bleak and her seizures and developmental delay are something that she will never grow out of.

People think that due to us meeting many celebrities, that we have have been helped out financially, but this is certainly not the case and the only kind hearted celebrities that have helped is Model Danielle Lloyd who is helping with Mya's Appeal by organising a fundraising event and Victoria & David Beckham who bought Mya her special needs puschair.

Mya has even had the chance to meet with pop group Girls Aloud at a Great Ormond Street Hospital Party in 2007 and with Peter André and Katie Price Aka Jordan through the charity When You Wish Upon a Star, which was one of the best days of her life.

We have been in the newspapers loads of times with Mya's Appeal (please see press releases page).

We are trying to give Mya as much of a normal life as possible.

If you can help in any way or are kind enough to help financially, can you please use the link at the top of this page to make a payment via Paypal or make cheques payable to “Mya Campbell” and send to: 3 Elgin Road, Cheshunt, Herts EN8 8QL.

If you know anyone who can help with Mya's Appeal whether financially or otherwise, please can you forward Mya's details onto them. We pray for a miracle every day.

Many thanks Tracie and Henry (Mya's parents)