Welcome to The Mya Campbell Appeal

Our beautiful daughter Mya who is 6 years old has Dravet syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), a rare, severe, uncontrolled and fatal form of epilepsy and severe global developmental delay. Mya has also been diagnosed as having ADHD (Attention Deficit Hyperactivity Disorder).

Mya’s illness is life threatening and she could die of SUDEP (Sudden Unexplained Death in Epilepsy) and we hope and pray every day that this doesn’t happen. Mya has very frequent seizures and has to have oxygen during and after an episode as her lips turn blue, meaning that she is starved of oxygen.

Mya has spent many occasions in Great Ormond Street Hospital’s intensive care unit for prolonged periods and has been in and out of different hospitals thousands of times since she was born. There seems to be no cure for Dravet’s and Mya has been on a cocktail of medication to try and help, but without success. Mya still has frequent seizures, so we try our best to make her life as comfortable as possible.

Mya has sadly suffered from her illness since she was just a few weeks old and has been always been on a cocktail of drugs. Mya is unable to speak and has no sense of danger and requires constant 24hour round the clock supervision and care. Unfortunately there is no known cure for Mya's condition which means she will never outgrow the condition and will be dependent on our support with all her day-to-day activities and needs for the rest of her life.

We are trying to raise urgent funds to provide our daughter Mya with some sensory equipment for her soft play room which is going to be done early next year, so that she can have a safe and stimulating environment to play in, whatever her state of health. We hopefully want to raise enough funds for a seizure alert dog.

Mya’s life looks very bleak and her seizures and developmental delay are something that she will never grow out of.

We are trying to give Mya as much of a normal life as possible, but because she is not very mobile as she is heavily reliant on the special needs pushchair, we are trying to give her some stimulating pleasure whilst she is at home. Mya doesn’t go to school due to her health problems and is taught at home as she requires one to one constant supervision 24 hours a day which the school cannot provide due to lack of funding.

If you can help in any way or are kind enough to help financially, can you please use the link at the top of this page to make a payment via Paypal or make cheques payable to “Mya Campbell” and send to: 3 Elgin Road, Cheshunt, Herts EN8 8QL.

Mya has even had the chance to meet with pop group Girls Aloud at a Great Ormond Street Hospital Party in 2007 and with Peter André and Katie Price Aka Jordan through the charity When You Wish Upon a Star, which was one of the best days of her life.

So, we are asking you to PLEASE PLEASE donate whatever you can afford for our beautiful daughter, to make her life a bit more bearable and to bring a bit of sunshine into her life.

Many many thanks Tracie and Henry (Mya's parents)